Take care of yourself. Your child's treatment depends on certain factors: Your child's hematologist-oncologist (cancer specialist) should develop a treatment plan that limits the amount of therapy needed to bring about a remission. This booklet is for people with chronic lymphocytic leukemia and others who want basic information about the disease. The CaregiverWorkbook was selected as a Gold Award winner in theannual National Health Information Awards program, which recognizes the nation's best consumer health information programs and materials. It guides the parents to talk to their child and discuss the potential safety issues, get the family involved and being proactive in seeking further support and advice. Cancer patients, especially those undergoing chemotherapy, are more likely to get infections because of their weakened immune systems. The kind of support needed will be different for each person and may also change over time. Children and young adults with HL are usually treated with one or more of the following approaches: Children are treated with response-based, dose-dense regimens. Senior Helpers - Louisville 3.7. Search for topics. Many comprehensive cancer centers around the country offer these programs. The Leukemia & Lymphoma Society (LLS) is a global leader in the fight against blood cancer. Search | Leukemia and Lymphoma Society - lls.org This fact sheet addresses some common questions that people may have about cancer-related fatigue. In addition, there are emoji magnets for kids to express their feelings. Skip to main content Main navigation Donate. Worksheets from The Caregiver Workbook | Leukemia and Lymphoma Society LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care. What treatments are available? The LLS mission: Cure leukemia, lymphoma, Hodgkin disease and myeloma, and improve the quality of life of patients and their families. Children treated for lymphoma may be at increased risk for. Use the following worksheets tohelp you in your caregiving role: Worksheet 4: Questions for Caregivers to Ask Their Loved Ones, Worksheet 13: Food Intake and Side-Effects Log, Worksheet 5: Healthcare Team Contact List, Worksheet 6a: Appointment Calendar, by Month, Worksheet 6b: Appointment Calendar, by Week, Worksheet 16: Understanding the Health Insurance Plan, Worksheet 17: Health Insurance Appeal Tracking Form, Worksheet 7: Questions for the Healthcare Team, Worksheet 19: Financial Assistance Record. Need information, support or financial help? The LLS mission: Cure leukemia, lymphoma, Hodgkin disease and myeloma, and improve the quality of life of patients and their families. A child's cancer diagnosis can bring with it feelings of uncertainty for parents and other family members. This easy-to-understand guide will provide you with basic information about stem cell transplantation. Please check back soon to order a copy. Nutrition Handbook for Parents: Feeding your children and building healthy habits, Patti Robinson Kaufmann First Connection Program, Post-Transplant Lymphoproliferative Disorders (PTLDs), Questions to Ask Your Healthcare Team About Minimal/Measurable Residual Disease (MRD), Resistant Chronic Myeloid Leukemia: A Guide for Patients & Caregivers, Side-Effect Management: Caring for Skin, Nails, Hair and Mouth, Side-Effect Management: Effects of Childhood Cancer Treatment on Learning, Side-Effect Management: Managing Blood Clots and Deep Vein Thrombosis (DVT), Side-Effect Management: Managing Diarrhea and Constipation, Side-Effect Management: Managing Low Appetite and Weight Loss, Side-Effect Management: Managing Low Blood Cell Counts, Side-Effect Management: Managing Mouth and Throat Side Effects, Side-Effect Management: Managing Nausea and Vomiting, Side-Effect Management: Managing Peripheral Neuropathy (Nerve Damage), Side-Effect Management: Memory and Concentration Problems in Adults, Side-Effect Management: Reducing Your Risk Of Infection, Survivorship Workbook for Adults (Navigating Life During and After a Blood Cancer Diagnosis), Survivorship Workbook for Children and Adolescents (Navigating Life During and After a Blood Cancer Diagnosis), Survivorship Workbook for Young Adults (Navigating Life During and After a Blood Cancer Diagnosis), The LLS PedAL Master Trial: A Clinical Trial for Acute Myeloid Leukemia Pediatric Patients, Understanding Clinical Trials for Blood Cancers, Worksheets from The Caring for Kids and Adolescents Workbook. This booklet is an easier-to-read version of theMyeloma booklet. Follow Olivia and her family in this3-book seriesasOlivia is diagnosed with leukemia, goes to the hospital for treatment, and returns to school. Highly trained oncology social workersand nurses. Many cancer treatments can cause nausea and vomiting. The Leukemia & Lymphoma Society (LLS) is a global leader in the fight against blood cancer. Caregiver Support | Leukemia and Lymphoma Society Why do people harm themselves? Download or order a copy of the workbook which provides information, resources and worksheets to use throughout your child's cancer journey. This 2-sided question guide includes questions to ask your healthcare team about minimal/measurable residual disease (MRD). Please check with your financial advisor if you have more questions. Caring for Caregivers is dedicated to offering educational options for all - improving CARE for the Last 5 Yards of life. Cancer and its treatment may cause people to experience a loss of appetite. Download or order a Caregiver Workbook, which contains worksheets to help you stay organized, and information and resources to use throughout the caregiving journey. This booklet provides information about cutaneous T-cell lymphomas (CTCL), relatively uncommon types of non-Hodgkin lymphomas. Free social work resources & tools for direct work with children and adults Information about how stress affects you and tips for stress management. Visit www.LLS.org/CaregiverWorkbook to access all chapters and worksheets. The Leukemia & Lymphoma Society is a 501(c)(3) organization, and all monetary donations are tax deductible to the fullest extent allowed by tax laws. The Leukemia & Lymphoma Society (LLS) offers financial assistance to help individuals with blood cancer. The CaregiverWorkbook was selected as a Gold Award winner in theannual National Health Information Awards program, which recognizes the nation's best consumer health information programs and materials. This nicely illustrated story book provides helpful and easy-to-understand answers to childrens common questions when a parent smokes cigarettes, and it offers the parent, grandparent, teacher, mental health or addiction professional, or other concerned adult a tool to aid in talking with children about smoking. (Guide for parents), Solution-focused practice A toolkit for children & young people (44 tools, games, activities, exercises), Smoking and Quitting: Clean air for all (educational storybook), Favourite therapeutic activities for children, adolescents and families: Practitioners share their most effective interventions, Growing up, sex and relationships information leaflet for disabled young people, Growing up, sex and relationships a guide for parents of young disabled people, Safe sleep for your baby booklet cot death prevention, How to support someone who feels suicidal booklet, How to cope with suicidal feelings booklet. Because of new and better therapies, cancer survival rates for children have improved dramatically during the last several decades. Download or order free information booklets | Leukemia and Lymphoma Use the following suggestions so you dont feel overwhelmed and can be at your best to help your loved one: Speak one-on-one with an Information Specialist who can assist you through cancer treatment, financial and social challenges and give accurate, up-to-date disease, treatment and support information. This fact sheet provides information about diagnosis, treatment and expected outcomes for Waldenstrm macroglobulinemia. Includes crayons. This booklet provides information about acute lymphoblastic leukemia (ALL) for patients and their families. To access each of the worksheets fromThe Caregiver Workbook, please visit www.LLS.org/CaregiverWorkbook. This guide provides advice and practical tips to parents on judging if a child is ready to be out on their own and how to prepare them for different situations such as walking to and from school by themselves, attending sports or holiday clubs, or, The toolkit presents ideas for worksheets and activities developed by NSPCC practitioners to be used with children and young people aged 5-19 years old during solution-focused work. The LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Your loved one may only need support occasionally, oryour loved one may need constant care. This fact sheet provides an overview of how integrative medicine and complementary therapies are being incorporated into blood cancer treatment plans. Listen to the webcasts covering topics for caregivers. The children are encouraged to talk/write about what makes them happy, upset and worried; about things they like to do by themselves or with their family and who they like, This 30-pagecoloring and activity book for young children has been developed by Leukemia & Lymphoma Sociate to help them cope with having cancer, talk to their doctors, express their feelings, and look forward to the future. This book is intended to be read aloud to children by parents, caregivers, preschool teachers, clergy, social workers, therapists, or by any other helping professional. Download or order a copy of the workbookwhich provides information, resources and worksheets to use throughout your child's cancer journey. Download Asistencia alimentaria recursos y consejos This fact sheet provides information about oral treatment adherence, including tips and resources to help you remember to take your medications. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care. Support for these caregiver resources provided by. An easy read booklet with important information about how to put a baby to bed to reduce the risk of sudden infant (cot) death. It includes both treatment-related magnets and general magnets for the patient, siblings and family to keep track of activities like school, events, or family time. This booklet provides information about how until legally provide direction for your future medical care, if you become unable to make decisions or speak for yourself. But if you're consistently providing care, you are a caregiver. ** The following article highlights free resources and programs that might be of particular interest to the young adult community; these are also available to all blood cancer patients, including the families and caregivers of adolescents with a blood cancer. If you are a parentof a minor child who has blood cancer, click herefor Caring for Kids and Adolescents with Blood Cancer: A Workbook for Families. To read the following chapters of the CaregiverWorkbook, click here. Balancing the various demands parents have to cope with isnt easy and all parents can come under pressure or stress from time to time. Worksheets from The Caregiver Workbook To access each of the worksheets from The Caregiver Workbook, please visit www.LLS.org/CaregiverWorkbook. The Leukemia & Lymphoma Society (LLS) is a global leader in the fight against blood cancer. LESSON 1: JUST TOUCH 1. This booklet is for patients with ALL, their families and caregivers. The Leukemia & Lymphoma Society is a 501(c)(3) organization, and all monetary donations are tax deductible to the fullest extent allowed by tax laws. This fact sheet provides information about graft-versus-host disease (GVHD). Watch videos with information, resources and support for caregivers. The Leukemia & Lymphoma Society is a 501(c)(3) organization, and all monetary donations are tax deductible to the fullest extent allowed by tax laws. Click here to accessA Doctors Guide for Discussing Measurable/Minimal Residual Disease with Patients. In this workbook, you will find: Caregiving tips and strategies; Questions to ask the healthcare team; Nutrition guidelines; Financial, legal and health insurance . Support for these caregiver resources provided by Pfizer Inc. and Takeda Oncology. The CaregiverWorkbook was selected as a Gold Award winner in theannual National Health Information Awards program, which recognizes the nation's best consumer health information programs and materials. Enter your information to receive occasional news and important updates! Our registered dietitian has expertise in oncology nutrition and provides patients, parents and caregivers with free nutrition consultations by phone or email. If youre providing regular assistance, you are a caregiver. Caregivers may find that using the book with their, This 32 page booklet covers some of the issues which parents may struggle with, when dealing with the children and young people regarding online safety. Easy-to-read information about Minimal/Measurable Residual Disease (MRD). The Leukemia & Lymphoma Society (LLS) is a global leader in the fight against blood cancer. Part of the The Caring for Kids And Adolescents with Blood Cancer workbook, which provides information for caregivers of child and adolescent patients.Caregivers may order a copy of the full workbook by calling (800) 955-4572. Visit www.LLS.org/CaregiverWorkbook to access all chapters and worksheets. Download or order The Leukemia & Lymphoma Society's free booklets: Myeloma Myeloma Guide: Information for Patients and Caregivers Clinical Trials Next Article Treatment Outcomes Journal includes blank pages, prompts, tips, coloring pages & more.
